Benjamin´s Think Tank

By: Rita Hausken
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  • Summary

  • When my son Benjamin (age 2) was diagnosed with the rare genetic disorder Hurlers Syndrom (MPS1), told he´d die between age 7-12, I was advised to leave my job, wait for him to die, then get back to my life. I did the opposite. I swore to never let someones limiting beliefs, experts or not, become my beliefs. I shared my ideas regardless how crazy they sounded and receive with gratitude. Here you'll hear stories from around the world where the word IMPOSSIBLE simply mean I`M POSSIBLE. You'll meet passionate doctors, patients and families who took it as an opportunity to make a difference.
    Rita Hausken
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Physical Illness & Disease Hygiene & Healthy Living
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Episodes
  • 2 - Appreciation

    2 - Appreciation
    Feb 19 2023
    In this episode, I explore the topic of appreciation and its importance in dealing with rare genetic disorders. I share my personal experience of receiving my child's Benjamin’s diagnosis and how I was initially overwhelmed with worry and fear. I felt the need to constantly research worst-case scenarios and understand everything about the illness. However, this led me to live in the future, always thinking about what could go wrong instead of appreciating the present moment with my child. It was a wake-up call for me to shift my perspective and commit to being present and appreciating the moment with my child. I discuss how this change in perspective resulted in an amazing response from my child. I noticed that my child was more receptive to treatments and improvements, and I could feel my child's cells responding positively. I emphasize the importance of creating a positive environment around my child with people who were looking for the good things and celebrating my child's successes. I even hired an assistant who was able to be present with my child and appreciate her for who she was, without worrying about the future. The episode reminds listeners in a similar situation to appreciate the present moment and not let worry overshadow the good things. It's important to be informed and prepared, but it's equally important to appreciate and celebrate the present. What you appreciate appreciates you back, and it can make a huge difference in the life of someone with a rare genetic disorder
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    14 mins
  • Benjamin diagnosed with MPS 1 - The impossible turned into possible!

    Benjamin diagnosed with MPS 1 - The impossible turned into possible!
    Jan 17 2023
    This episode tells the story of one family’s struggle ( my own story) with a devastating diagnosis when their two-year-old son Benjamin was found to have a progressive genetic disorder called Hurler Syndrome (MPS1). With doctors warning that Benjamin may only live for five years, his parents refused to give in and instead used this life-changing moment to take charge of their own future. This remarkable story is an inspiring tale of hope and courage – showing how even in the face of an impossible situation, nothing is ever truly out of reach.
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    32 mins

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