• Episode 29: Mae and Katie Lane-Karnas, "Using my vision is always going to be exhausting and tiring, and I'm going to have much less retention than if I learn things auditorily or tactually."

  • Oct 31 2023
  • Length: 51 mins
  • Podcast

Episode 29: Mae and Katie Lane-Karnas, "Using my vision is always going to be exhausting and tiring, and I'm going to have much less retention than if I learn things auditorily or tactually."

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  • Summary

  • Mae Lane-Karnas is a 14-year-old diagnosed with CVI who loves braille, math, and art. Due to CVI, Mae has a host of visual challenges that cause her to function at the level of legal blindness, even though her visual acuities are typical. In the past year, Mae has co-presented to the Principals of Schools for the Blind and the Association for Education and Rehabilitation of the Blind (AER) on use of Nemeth code for middle school students with CVI. Mae co-organizes an ongoing CVI discussion group at Smith Kettlewell Eye Research Institute and serves on the board of the National Federation of the Blind of Vermont. Katie Lane-Karnas is Mae’s mother and the primary homeschooling parent to her two daughters in rural Vermont. When Mae was diagnosed with CVI two years ago, Katie began facilitating Mae’s learning in braille, Nemeth code, AT, O&M, and the ECC. Katie authored a paper, “A Case Study on CVI, Reading, and Braille,” that has been accepted for publication in 2024 by the Journal of Visual Impairment and Blindness on her family’s learnings from Mae’s experiences. Both Katie and Mae join us on this month’s episode of the BEST Together podcast to share their lived experiences with CVI.
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