Rare Care Podcast

By: Rare Care Podcast
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  • Summary

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Hygiene & Healthy Living Science
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Episodes
  • 143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H

    143: An Interview With Ignacio Muñoz-Sanjuan, PhD, President and Founder of Factor-H
    Nov 5 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Ignacio Muñoz-Sanjuan, PhD, the president and founder of Factor-H—a Los Angeles-based nonprofit organization that works to alleviate extreme poverty among people with Huntington disease in Venezuela, Colombia, and Peru.
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    16 mins
  • 142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation

    142: An Interview With Amy Case, MD, Chief Medical Officer of the Pulmonary Fibrosis Foundation
    Nov 4 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Amy Case, MD, chief medical officer of the Pulmonary Fibrosis Foundation, about the importance of passing the bipartisan Supplemental Oxygen Access Reform (SOAR) Act, which is currently stalled in Congress.
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    17 mins
  • 141: An Interview WIth Steve Van Wormer, Cofounder and Director of the Phaware Global Association

    141: An Interview WIth Steve Van Wormer, Cofounder and Director of the Phaware Global Association
    Oct 21 2024

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Steve Van Wormer, cofounder and director of the Phaware Global Association. Van Wormer became a patient advocate after his late son, Lucas, was diagnosed with pulmonary hypertension at age 4.
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    12 mins

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